A National Rare Disease Plan To Be Presented to the Minister of Health

A national rare disorder plan is going to be submitted towards the Minister for Health later in 2012, and preparations are being now made by the HSE working place management and clinical leads regarding the new National Clinical Programme for Rare Diseases.

An existing priority regarding the Department of Health is the development of a national plan relative to the subject of rare diseases. EU proposals on rare health conditions, which Ireland fully supports, suggested the introduction of plans or strategies, ideally by the end of 2013. We now seem to be well advanced in producing this work, Minister for Health Dr. James Reilly said to produce a recent Dail questioning by self-reliant Deputy Michael Healy-Rae.

The HSE’s Chronic Disease Restriction Programme is submitting to focus on three key areas. It aims making sure that people at known higher risk of outbreaks of illness or death via CVD, diabetes, respiratory or cancer stipulations receive an evidence-based regime of care in first care and clinics.

The process will aim to detect the public not previously noted along with risk factors which generally put them at high risk of illness or death. These can be risk factors in common with cardio illness, diabetes, respiratory illness and melanoma. The process also will initiate an evidence-based plan of care in first care and, to a lesser level, in hospitals.